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11-24-2008   #1 (permalink)
Mai
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Default Opinions/Thoughts over this..?

I am not quite sure if this is the right place to post, and I wasn't planning to post this on the forums but I'd really like to hear what you guys have to say about this. I'd appreciate anything and help! <3 If possible, (This may be tl;dr) but I'd really like some questions regarding when to deal with friendships/relationships or just stuff that has to do with being emotional or anything.

I'm originally planning on printing this out once I am finished writing it, I'm not completely done yet as I still have a lot in mind to write about and I'm considering in adding a true or false section for this. I figured it'd really help out people who suffer with CF that have to be stuck in the hospital all the time, and with all those questions they may ask and such.

I plan on handing this to my Child Life Specialist next time I come back to the hospital for my Physical Therapy (which will be this Friday, if I have it done by then.) and I'll ask her if she could make copies and give it to CF patients at the hospital to see if that will help. I also plan on talking about my own life experiences with CF, too. So I'd really, really love opinions and thoughts on this + some questions I could add so I can answer!

Spoiler!


Thank you, I'd appreciate anything!


What I have to write about:
- Coping with Death
- How to handle between relationships/friendships and CF altogether
- My own life experiences
- What to Expect
- Road to Recovery
- Staying Positive
- Accepting help/support from close friends and family

Last edited by Mai; 11-24-2008 at 10:45 PM. Reason: added more
 
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11-24-2008   #2 (permalink)
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Mai what you have written there could really help some people, good job. Give it to your doctor person soon.
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11-24-2008   #3 (permalink)
Mai
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Thanks! I definitely will print some pages to hand out to the volunteer manager, my doctor, and my child life specialist. I really do hope this will work since I have plenty of more to write about!
 
11-24-2008   #4 (permalink)
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I think this is really good.
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11-24-2008   #5 (permalink)
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Thank you ^o^ I'm currently taking a break from writing it o: I started it last night and I'm trying to take it easy
 
11-24-2008   #6 (permalink)
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I've added a few more things, if anyone'd be interested. =p
 

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